Those are the words we heard on Monday. Silas, my precious 4 year old little boy is terminal.
I won't go into a lot of detail here but you can read his caring bridge page if you like. Its under silasedenfield there.
I am praying so hard for him to make it through June. I want him around MUCH longer, but if he could just make it through June.
Without any further treatment he has maybe 2-4 months left, maybe longer. If we do some treatment to slow the cancer down, we may have 6 months to a year. But no one knows for sure.
Right now he is fine. He's happy, he's got a normal little cold, he's talking, playing, running around, eating, just being a little boy.
Its so hard to wrap my mind around the fact that his body is riddled with tiny tumors that are growing at an alarming rate. It doesn't seem real.
There are so many things I want him to experience before he's gone. He says all he wants to do it go to Sea World, have the best birthday party ever, and go visit family in California. Lots of friends and family are gathering together to make those things happen for him. We are so blessed.
As for MIL, she is doing really well in the nursing home, better than we expected. She has been there for 2 months now and has not asked once about coming home. Dh says there is no way he can bring her home while Silas is still with us, and he's not sure he can do it after he's gone either. I am totally letting him make this decision, its his mom. If he wants to bring her home at some point after Silas is gone, I will do my best to take care of her, but if he can't, that's OK too, I will support his decision.
Right now we are doing all we can to give Silas all of the joy we can while he is still with us on this earth. He knows what's happening, he knows he's going to Heaven, and he is not afraid. I dare say he's excited about going to Heaven and being with God! He's so tired of having cancer and wants so much to have a new body that will never get sick.