I have been caring for my mother since october 2013. She has been placed on hospice at that time for copd. I have moved from my home in the south central us to southern california to take care of her. I quit my job, left my wife at home and we have given up on medical support to help her have a baby. I have given up my whole life, I have seen my wife twice since I have moved to california. I have 2 brothers and a sister who all live in california, my 2 brothers could not handle strain of caring for my mother, my sister can only come out periodically since she likes to babysit her grandchildren. Despite their lack of involvement they complain and they complain and they complain. "mom should take less morphine, she should be up more, she needs to excercise, she should walk more" She is dying and I believe this week starting to go into active dying, (she has pnemonia) she uses all of her strength, and her oxygen on breathing and at this point excercising is going to take the oxygen away from her brain and muscles used to breath (rn has told me this) my family has agreed to provide me a salary of just over $100 a day. They are driving me nuts. I would love to hear other peoples horror stories about dealing with their families so I may gain insight and feel less alone.
Shame on them for not taking care of your mother with you. I'm sorry to hear that you can't see your wife more often. I know that without my Rocky (serious boyfriend) I would be having serious crying sessions, and bursts of anger towards my brother who has OCD. I couldn't deal without Victor my cousin who entertains both of us. I'm sorry that you mom's health's declining as well. I understand what a family member is like when they don't seem to understand the disorder or disease and just want extremes of the person when they don't understand it then they get frustrated at you the caregiver because it seems like you aren't caring right.