Caregiver Help | Caregiver Action Network

Caregiver Help

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mmc567
Caregiver Help

My 61 year old wife was diagnosed two years ago with PD.  I am having real difficulty trying to get involved with her care even though I am the primary caregiver.  She has a medical nursing education and thinks I should know and understand all details about her medications, e.g., what they're for specifically, how thye interact, how they affect her, what they are intended to treat, etc.  She also has severe hypoglycemia and lupus, so her medication list is rather comprehensive.  I don't consider myself a good caregiver, and she frequently reminds me that that is also her opinion.  I work full time and try to keep foods that she can eat in the house for her.  I do the shopping and cooking, but her diet is very limited by the hypoglycemia.  I don't really know why I'm writing all this, but I want to be a better caregiver.  Has anyone had any dealings with one of those meal delivery companies?.......Blue Apron, etc.,?  I need to provide her better and more complete meals.  Maybe that would be a good place to start to improve my caregiving........

DavidBrown
If you think that you are not

If you think that you are not able to provide her better care then I would suggest you to hire a personal caregiver who can take proper care of your wife. My cousin was also in the same situation once but now he is really doing well as he got the healthcare insurance from a private company (https://www.thehealthexchangeagency.com), under which he got the 24/7 nursing facility for his mom. Try to contact the expert regarding the healthy care giving to your wife.

akyllingmark
akyllingmark's picture
My Dad has PD, and as a

My Dad has PD, and as a family, we decided to keep him OUT of a "care" home as long as possible. A friend of ours was paying $15,000 per month for her mother and was so disgusted by the conditions there that she brought her home instead. She was being left to sit in a soiled diaper for long periods, etc. It depends on the situation, but I believe you'll never regret giving the highest possible level of care, which in most cases means YOU. Using a food service might be a good idea, however.

As far as complaints go, I wouldn't take them to heart too much. Yes, there is always something to learn, but I was surprised by my sweet, thankful mother whining and complaining like a two-year-old. She is not normally like that. I believe much of that is frustration from loss of personal power and dignity.