I've been married for over 40 years. For the past 15 years I've been my wife's caregiver. She has advanced multiple sclerosis and her symptoms keep getting worse, gradually taking away more and more of her already limited independence. As her disease has progressed, I've made home and lifestyle adaptations to make it possible and as pleasant as possible for my wife to remain at home. This runs the gamut from home accessibility modifications, to arranging for visitors who spend time with her, and work with her on art, writing and cooking projects.
While we're not there yet, unless her disease stops advancing, I can foresee a time in the not too distant future when it will no longer be feasible for her to remain at the house. She'll need to live somewhere where she has 24 hour care under the supervision of professionals.
Because I’m so close to the situation, and it evolves and deteriorates so gradually, I don’t know if I’m really equipped to make the decision to change her living situation from home to an institution on my own. My worries are that I'll either be too late, and something horrible happens to her while she’s at home, or I'll be too early, and she'll ending up living in a nursing home or some other institutional setting for a long time when she could have been OK at home.
So I’m reaching out to this community of care givers, to ask how you’ve made those kinds of decisions. Have there been professionals who’ve helped you in this process? Have you receive this kind of guidance from doctors, social workers or some other kind of professional or specialist?
Any suggestions you have will be greatly appreciated!
Not a Chicken Souper