10 years without diagnoses ! | Caregiver Action Network

10 years without diagnoses !

Name: 
Amani
Caregiver Relationship: 
Parent
Living Arrangements: 
Share Home
Primary Illness: 
Alzheimer's Disease/Dementia

After one week, I will complete two years not seeing her. About 10 years ago I started to notice that my mother forgetting things, names and places.

My mother was so nice and has a good big heart, never say no, never hurt anyone and she always forgive others. She was a teacher, goes everyday to work without knowing that she had an early stage Alzheimer disease. Symptoms start to appear and no one understands what is happening!

Later, her work start to call me says:" could you come and take your mother? ", And when she sees me coming to take her she was like " yes finally someone I knew!” She thinks that I am her sister and her mined goes back about 20 years. She thinks that she is the 20 years old girl who have to study and talk to me as I am her sister.

I do not know what to do, I cannot stay at home and watch her, and cannot leave her alone. I remember one day she want to visit her mother, she ask the driver to turn on the car, 10 minute later she does not where she is or what she is doing! The driver calls me; in that moment I relay that there is something wrong with her. She have insomnia so many days, I was setting her because I notice that she may do things with no sense. Later she developed depression and that was obvious, I success to reduce her depression symptoms and get her out of that dark umbrella, but not the other one.  

After each episode she asked me to not tell anyone, I tried to explain to her doctor what symptoms she have, but no answer. I never thought that she would have this disease; she was so smart and interested in learning. 

The last 2 years was too bad, I tried help her and I saw improvement despite I do not know at that time that she had Alzheimer.

When she passed away in 2015, I have so many questions, I start look and search but I do not know where should I start! 

No body knows that s caregiver suffering, unless you are one, seeing the best person in your life suffering is a slow death to you, doing no thing is most bad than watching.

 

Now I am a pharmacist, the first hint was when I studied this disease, I ask for help from my doctor, I have to say that she draw the path for me.

 

Thank you for this opportunity to share this with you