kathryn | Caregiver Action Network

kathryn

Name: 
kathryn
Location: 
larimore
Caregiver Relationship: 
Spouse
Living Arrangements: 
Share Home
Primary Illness: 
Pulmonary Disease

we live in north dakota winters here are rough.  My husband is 65. i just turned 62.  I worked for over 18 yrs full time to support us.  I was a cna, an activities assisant, med aide ect for my job i wore many hats.  Even before he was diagnosed i took care of most things.  I have been primary at everything for about 10 yrs.  he has been on oxygen and worse for past 5 yrs.  He was told he had maybe 2 to 3 yrs to live at 1st that was over 5 yrs ago.  I take care of home car yard worked , groc cook ect bills appts everything.  .  i am experiencing burnout here of late since covid alot has changed.  my hours at work were cut back.  and because of my own health issues i was forced to retire early .  I have been off work at job since march.  So i do not have my work support as i did.  No pay check either so finances are harder too now.  I am a Very religious woman.  I know in my heart God has a plan for our lives and has blessed us in many ways.  IT is hard for me to get help when i need it and for family to be more respectful to our wishes.  My husband is quite difficult and very laid back.  I am a go getter i never sit still.  I like to be busy and productive.  It is hard to take care of him at times as he can be rude and demanding.  I try to remember what i learned at work but its harder with family.  I feel bad as i have not be as nice lately to him as i was in the past.  It is also harder because i was trying to leave him before he got too ill.  We arent really very compatable and should have divorced years ago.  I still care for him just not a deep love like i should have.  we had been mostly roomies for years.  I have my bed room he has his.  I did and went where i wanted he stayed home. he spends 12 or more hours a day on internet.  he doesnt prefer to be around others.  so long as i provide food and his coffee he is happy.  unless his tv or computer time is interrrupted.  I am trying hard to be positive and continue to take best care i can of him.  it is very challenging most of the time.  from other stories ive heard.  i guess my situation isnt so bad.  its just harder now that i have my own health issues to cope with.  And i feel abandoned more now that i dont go out to work anymore.  At times i feel very trapped.  I try to keep in prayer and not lose my faith.  as i havent been to church in years that gets harder too.  right now i just need a compasonate ear. and a kind word.   

Wish List: 
1. more help by caring people. 2. more patience with spouse 3. financial help, get paid to care for him 4. less stress more time.