If you’re caring for an adult child who has aged out of many support services available to families with children with special needs, you may feel as though society believes your child is now “on their own.”

Colin Farrell’s Inspiration

Actor Colin Farrell has started the Colin Farrell Foundation in honor of his 20-year-old son, James, who has Angelman syndrome—a rare neurological disorder. The foundation will support adult children with intellectual disabilities through advocacy, education, and innovative programs.

Understanding Angelman Syndrome

Angelman syndrome is a rare genetic condition that causes delayed development and affects speech, movement, and behavior. In an article for People Magazine, Farrell shares that this is the first time he’s talked about the foundation. Unable to ask James if this is something he wants to do, Farrell believes that based on his son’s caring spirit, he would approve.

Farrell’s Commitment to Families

Farrell has long wanted to create something meaningful for families with children with special needs. He says, “James and those like him have earned the right to have a greater degree of individuality and autonomy in life and a greater degree of community.”

A Father’s Pride

Farrell speaks proudly of his son’s efforts. “I’m proud of him every day because I just think he’s magic,” he says.

Additional Resources

For more information on caring for a loved one with a rare disease, visit the Caregiver Action Network’s Rare Caregiver Initiative.

If you need help finding resources, have questions, or need someone to talk to, you can contact our free Caregiver Help Desk.

Original Article and Photos Accredited to People Magazine: https://people.com/colin-farrell-starts-foundation-in-honor-of-son-with-angelman-syndrome-as-he-opens-up-about-their-life-exclusive-8690950