Are you a caregiver?

You might already be one. Here’s what that can look like.

A caregiver is anyone who helps another person manage their health, daily needs, or overall well-being—often without pay. You might be a caregiver if you:

  • Help a family member, partner, friend, or neighbor with everyday tasks

  • Coordinate or attend medical appointments

  • Manage medications or health-related needs

  • Provide emotional support, check-ins, or advocacy

  • Assist with household responsibilities or transportation

  • Step in regularly because someone relies on you

If you see yourself in any of these roles, you can identify as a family caregiver—even if you’ve never used that term before. Caregiving looks different for everyone, but every caregiver plays a vital role and deserves recognition and support.

The Caregiver’s Role

Everyday Support That Makes a Difference

Chronic Kidney Disease (CKD) is a long-term condition in which the kidneys gradually lose function over time, often progressing to end-stage renal disease (ESRD) requiring dialysis or transplantation. Caregivers often help manage complex medication schedules, dietary and fluid restrictions, lab monitoring, coordination with nephrologists, dialysis logistics, and emotional support. Because kidney disease can fluctuate and its treatments can be burdensome, caregivers must balance vigilance, planning, and self-care.

Kidney Disease

Top 3 Things Caregivers Should Know

Managing Diet, Fluids & Medications Is a Daily Balancing Act

Kidney disease care often involves strict limits on sodium, phosphorus, potassium, protein, and fluids—along with medications (e.g. to control blood pressure, anemia, mineral balance). Small dietary or medication missteps can lead to serious consequences, so clear tracking, communication, and coordination with the care team are essential.

Dialysis, Transplant, and Treatment Options Bring New Care Demands

As CKD advances, decisions around dialysis (in-center, home hemodialysis, peritoneal) or the possibility of transplant become central. Caregivers may need to assist with treatment logistics, understanding modalities, post-treatment recovery, and adjustments in life rhythm.

Emotional & Practical Burden Can Be Underestimated

Kidney disease often carries fatigue, hospitalizations, uncertainty, and lifestyle limitations. Caregivers are at risk of burnout, emotional strain, or neglecting their own health. Establishing support, respite strategies, and setting boundaries is as important as the medical caregiving role.

Caregiver Resources from Our Partners

Organization

For Caregivers and Care Partners

The IgA Nephropathy Foundation recognizes the vital role caregivers and care partners play in helping loved ones manage and live with IgA Nephropathy. As such, we have developed an array of resources to help.

Support Groups

Virtual Support Groups

We hold patient support groups virtually on the third Monday of every month and Care Partner support groups the third Tuesday of every month to give IgAN patients and those that care for them an opportunity to meet each other and share their journeys.

Assistance

Safety Net Grant Program

AKF offers a Safety Net Grant to help kidney patients (including dialysis and transplant recipients) with non-covered healthcare costs—transportation, prescriptions, and medical supplies.

Online Article

Unsung Hero

AKF has written about the impact of caregivers in kidney disease care and the critical role they play.

Organization

Family & Caregiver Resources

The NKF provides a hub of tools, tips, and support specifically for caregivers managing kidney disease in loved ones.

This resource was developed with support from IgAN Foundation.

Caregiver Action Network Resources

Explore Your Community Support Options

Personalized Guidance from Caregiving Experts

Personalized Guidance from Caregiving Experts

Available Monday-Friday from 8am – 7pm ET, our experts are ready with the personalized support, guidance, and assistance you need and deserve–for as long as you need it.

(855) 227-3640

24/7 Access to Hundreds of Helpful Resources

24/7 Access to Hundreds of Helpful Resources

The National Caregiver Help Desk App, powered by Carallel, is full of bite-sized resources crafted to help you build skills, validate what you’re feeling, and help you get stuff done.

Use Access Code: CAN

Connection & Community with Other Caregivers

Expert-Led Virtual Fireside Chats

These 30-minute virtual fireside chats address the complex and often difficult topics encountered by caregivers. Sessions are led by Matt Perrin, Carallel’s Director of Caregiver Engagement, and Sheila Schultz, a Carallel Care Advocate.

Community with Other Caregivers

Community With Other Caregivers

Through CAN, Carallel Support Groups give you a place to ask questions, feel understood, and build confidence in your caregiving journey. Access is simple and available when you need it.

Certified Listeners

Connect with Certified Listeners

Looking for someone who really gets it? Get matched with trained listeners who share your lived experience—whether that’s caring for someone with Alzheimer’s, cancer, or another chronic condition.

Facebook Support Group for Caregivers

Online Support Group on Facebook

Join our caregiver community on Facebook to connect with thousands of peers in a welcoming, supportive space.
Ask questions, share experiences, and receive advice any time of day.

We’re meeting caregivers where they are—giving you choices for how you want to connect, whether through expert advice, peer-to-peer empathy, or live support groups.