Caring for a loved one with Alzheimer’s or cognitive impairment is never easy, but when you’re providing care from a distance, the challenges grow exponentially. Long-distance caregiving often involves less “hands-on” care and more focus on coordinating services, gathering resources, and building a reliable support team. 

In the United States, over 53 million people provide unpaid care for loved ones, many of whom face the unique challenges of caregiving for those with cognitive impairment. These family caregivers often experience higher rates of emotional and physical stress, putting them at increased risk of depression. 

If you’re navigating the complexities of long-distance caregiving, here are tips and strategies to help you care for your loved one while prioritizing your own well-being.

Educate Yourself About Alzheimer’s and Cognitive Impairment 

The first step to effective caregiving is understanding the condition. Learn as much as you can about Alzheimer’s and cognitive impairment, including the symptoms beyond memory loss. Behavioral symptoms like agitation, aggression, hallucinations, depression, and paranoia can be alarming but are part of the condition. 

• Ask Questions: Talk to your loved one’s doctor to understand their condition and treatment options. 

• Learn About Symptoms: Familiarize yourself with behavioral changes and how they progress. For more information, visit the Alzheimer’s Association and Alzheimers.gov. 

Coordinate Care Remotely 

Since you can’t be there every day, building a care network is essential. 

• Keep a list of all caregivers, healthcare professionals, and anyone involved in your loved one’s care. 

• Set up regular check-ins with their care team, including doctors, nursing staff, and family members. 

• Use technology like video calls to stay connected with your loved one and observe any changes in their behavior or condition. 

For guidance on creating a care plan, explore Caregiver Action Network’s Around the Clock Caregiving resources. 

Reassess Needs Frequently 

Cognitive impairment is a progressive condition, so your loved one’s care needs will change over time. 

• Early Stages: Monitor their ability to manage daily tasks like cooking, grooming, and paying bills. 

• Middle Stages: At this point, your loved one will likely need 24-hour care for safety. Stay in close contact with their caregivers to ensure their needs are being met. 

• Late Stages: If home care is no longer sufficient, consider transitioning your loved one to a long-term care facility. 

Each visit is an opportunity to reassess their condition and make adjustments to their care plan. 

Get Organized 

Keeping your loved one’s medical and financial information organized can reduce stress and prevent emergencies. 

• Maintain an up-to-date patient file with medication lists and doctor contact information. Visit Patient File Checklist for Effective Caregiver Management to learn more. 

• Set up autopay for bills and gather essential documents like wills, healthcare proxies, and powers of attorney. 

• Discuss financial arrangements early to avoid complications later. 

Visit Caregiver Action Network’s Financial and Legal Tools for additional resources. 

Make the Most of Your Visits

When you visit your loved one, try to strike a balance between managing logistics and spending quality time together. 

• Plan your visit in advance to prioritize key tasks, like addressing home safety or attending doctor’s appointments. 

• Spend time connecting with your loved one through meaningful activities, such as listening to music, looking through photo albums, or simply sitting together. 

Even if your loved one doesn’t remember you, your presence can improve their mood and provide comfort. 

Take Care of Yourself 

Caregiving from a distance can lead to feelings of guilt or helplessness, but it’s important to remember that you’re doing your best. 

• Join a caregiver support group to share experiences and gain emotional support. 

• Ask family members or friends for help when needed. 

• Prioritize self-care by managing your stress and carving out time for activities you enjoy. 

For additional tips, explore Caregiver Action Network’s 10 Tips for Family Caregivers.

Address Behavioral and Communication Challenges 

Behavioral changes like agitation, paranoia, and sundowning can be difficult to manage. Here are practical strategies: 

• Agitation: Create a calming environment, validate their feelings, and use distraction techniques. 

• Paranoia: Help them “find” missing items and reassure them with non-verbal cues. 

• Sundowning: Encourage daytime activity, limit sugar and caffeine, and plan relaxing evening routines. 

For more information, read Lighting Your Way: Dealing with the Behavioral Symptoms of Your Loved One’s Dementia.

Ensure Home Safety

If your loved one is still living at home, take steps to make their environment safe: 

• Lock away hazardous materials like medications and cleaning supplies. 

• Install grab bars in the bathroom and use non-slip mats in the shower. 

• Consider door alarms or ID bracelets for loved ones who may wander. 

Caregiving in the US: A Complex but Vital Role 

Caregiving in the US is both a challenge and a privilege. As a long-distance caregiver, your role involves managing logistics, coordinating care, and providing emotional support—all from afar. With preparation, education, and the right resources, you can navigate the complexities of caregiving and ensure your loved one receives the best possible care.