Caregiver Agencies Near Me and Organizations

Caregiver Organizations, Information, Advocacy, and Support

Caregiver Action Network (CAN)

CAN is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease. CAN (formerly the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

Family Caregiver Alliance (FCA)

FCA is the lead agency in California's system of Caregiver Resource Centers. FCA provides support and help to family caregivers and champions their cause through education, services, research and advocacy. Services are specific to California, although information can be accessed nationally.

Family Voices, Inc.

Family Voices offers information on healthcare policies relevant to special needs children in every state.

Friends' Health Connection

Friends' Health Connection links persons with illness or disability and their family caregivers with others experiencing the same challenges.

National Alliance for Caregiving

Although not an organization that helps family caregivers directly, The National Alliance for Caregiving's Website helps family caregivers learn about information, videos, pamphlets, etc. that have been reviewed and approved as providing solid information.

National Family Caregivers Association

On January 1, 2013, the National Family Caregivers Association became Caregiver Action Network.

Rosalynn Carter Institute for Caregivers

The Rosalynn Carter Institute for Caregivers promotes the health, strength, and resilience of caregivers throughout the United States. Established in 1987 by former First Lady Rosalynn Carter, the Institute's priority is the family caregiver; those individuals who care for a relative, friend or loved one. 

U.S. Department of Health and Human Services

A federal Web site designed to help people stay healthy. Healthfinder.gov features links to more than 6,000 government and nonprofit health information resources on hundreds of health topics including personalized health tools such as health calculators, activity and menu planners, recipes, and online checkups. In addition, the site offers tips for caregivers and health news. Information is provided in English and Spanish.

Well Spouse Association

Well Spouse is a national membership organization that gives support to husbands, wives, and partners of the chronically ill and/or disabled. Well Spouse has a network of support groups and also a newsletter for spouses.

Caring for Elders

AARP

AARP supplies information about caregiving, long-term care, and aging, including publications and audio-visual aids for caregivers.

AGIS Network

AGIS provides education, support, expert advice, local resources, and a vibrant community for caregivers and families of the elderly.

Eldercare Locator

Eldercare Locator provides referrals to Area Agencies on Aging via zip code locations. Family caregivers can also find information about many eldercare issues and services available in local communities.

Home Instead - 40/70 Rule

What does a grown daughter say to her dad when he's hit a light pole with the car? How does an adult son ask his mom if she's taking her medications like she should? And how do siblings approach their parents about needing more help at home? These issues can challenge even the family where communication is free and open. Talking sooner is better than waiting until a crisis has occurred. That's what the "40-70 Rule" is all about. This advice is designed to help adult children and their aging parents deal with those sensitive topics that often make conversations difficult. The idea is that if you're 40, or your parents are 70, it's time to start talking about the issues of aging.

The National Association of Professional Geriatric Care Managers

Geriatric care managers (GCMs) are health care professionals, most often social workers, who help families in dealing with the problems and challenges associated with caring for the elderly. This national organization will refer family caregivers to their state chapters, which in turn can provide the names of GCMs in your area. This information is also available online.

U.S. Administration on Aging

The Administration on Aging is the official federal agency dedicated to the delivery of supportive home and community-based services to older individuals and their caregivers. The AoA Website has a special section on family caregiving.

End-of-Life Planning, Hospice and Bereavement Information

Aging with Dignity

Aging with Dignity publishes the Five Wishes Living Will document, a very user-friendly and comprehensive document that meets legal requirements in 35 states.

Caring Connections

Caring Connections provides free brochures on end-of-life topics including advance care planning, caregiving, hospice and palliative care, pain, grief and loss, and financial issues. Caring Connections also provides Advanced Directives for all states.

HospiceDirectory.org

Online consumer database that lists hospices in North America and the U.S. All hospices are listed at no cost. It is a free service that assists families and individuals in locating a hospice within their community quickly. It also provides reliable information about hospice and end-of-life care to consumers.

Hospice Foundation of America

The National Hospice Foundation hosts an annual teleconference on issues of bereavement, and has publications on grief and bereavement.

The Compassionate Friends

This group offers telephone support and understanding to families who have lost a child. They maintain a resource library and have a national chapter network and newsletter.

U.S. Department of Health and Human Services

The National Clearinghouse for Long-Term Care Information provides information on planning and financing long-term care including planning for end-of-life care, and all major types of public and private financing to help cover long-term care costs.

Patient Advocacy Assistance and Programs

Patient Advocate Foundation

Patient Advocate Foundation serves as a liaison between patients and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relating to a patient's condition.

Homecare Agencies National Association for Home Care and Hospice

This organization for home healthcare agency providers allows family caregivers to use the Internet to access a list of member agencies across the country.

Visiting Nurse Associations of America

VNAA promotes community based home healthcare. Family caregivers can contact them to find their local VNA.

Assisted Living, Nursing Home, and Residential Care Consumer Consortium on Assisted Living (CCAL)

CCAL is a national consumer-focused organization that is dedicated to representing the needs of residents in assisted living facilities and educating consumers, professionals, and the general public about assisted living issues. Family caregivers can request the publication "Choosing an Assisted Living Facility: Strategies for Making the Right Decision," which provides helpful information and a concise checklist for those contemplating this next step.

National Citizens' Coalition for Nursing Home Reform

This organization serves as an information clearinghouse and offers referrals nationwide for help with concerns about long-term care facilities.

Medical Transport and Hospitality Housing National Association of Hospital Hospitality Houses (NAHHH)

NAHHH represents organizations that provide lodging (and service) for families receiving medical care away from home; furnishes information about hospitality homes in the caller's area; offers a newsletter; and publishes an annual directory of facilities offering lodging.

National Patient Travel Center

Family caregivers can receive help in locating air transportation for needy patients who need distant specialized medical evaluation, diagnosis, or treatment. The National Patient Travel Helpline is available 24/7 and provides referrals to all major medical transport providers in the network.

Health Insurance: Prescription Assistance Information

Family caregivers can contact their county or state Department of Health and Human Services for financial programs which may provide assistance for acquiring health insurance and prescription medications. Other possible financial resources may include social service agencies such as Catholic Charities, the Association of Jewish Families, and Children's Agencies. Local chapters of voluntary health agencies may also offer financial support programs and/or information on how to apply for such programs.

Benefits Check-Up and Benefits Check-Up RX Websites

A service of the National Council on the Aging, Benefits Check-Up and Benefits Check-UP RX help people over the age of 55 find federal, state, and local public and private programs that may pay for some of their medical care and/or prescription costs

Medicare Website

This is the official Website for the Centers for Medicare and Medicaid Services (CMS), the agency responsible for Medicare Rx. The toll-free number is 800/MEDICARE.

Medicare Rights Center

This is an independent source of health care information and assistance for older and disabled Americans, their caregivers, and the professionals who serve them. Medicare Interactive (MI) is the one-stop source for information about health care rights, options, and benefits, and it is designed to help people find answers to all their Medicare questions. The website also has a list of phone numbers for each state's "State Health Insurance Assistance Program."

Medicare Plans Patient Resource Center

The Medicare Plans Patient Resource Center supports the families and loved ones of older adults and people with disabilities. They are dedicated to providing access to affordable health care through educational programs, interactive resources, and functional tools.

Homecare Agencies

National Association for Home Care and Hospice

This organization for home healthcare agency providers allows family caregivers to use the Internet to access a list of member agencies across the country.

Visiting Nurse Associations of America

VNAA promotes community based home healthcare. Family caregivers can contact them to find their local VNA.

Assisted Living, Nursing Home, and Residential Care

Consumer Consortium on Assisted Living (CCAL)

CCAL is a national consumer-focused organization that is dedicated to representing the needs of residents in assisted living facilities and educating consumers, professionals, and the general public about assisted living issues. Family caregivers can request the publication "Choosing an Assisted Living Facility: Strategies for Making the Right Decision," which provides helpful information and a concise checklist for those contemplating this next step.

National Citizens' Coalition for Nursing Home Reform

This organization serves as an information clearinghouse and offers referrals nationwide for help with concerns about long-term care facilities.

Senior Advisor

SeniorAdvisor.com is one of the nation's largest senior living review sites. Browse photos, ratings, and opinions of assisted living, dementia care, independent living, senior apartments, and more - all by people just like you. You'll also find top rated senior in-home care providers, elder care attorneys, and a community full of advice for virtually every facet of your retirement planning.

Respite Resources

Easter Seals

Easter Seals provides a variety of services at 400 sites nationwide for children and adults with disabilities, including adult day care, in-home care, camps for special needs children, and more. Services vary by site.​

National Adult Day Services Association, Inc.

This association provides information about locating adult day care centers in your local area.

National Respite Coalition (NRC)

When you join the National Respite Network you are automatically a member of the National Respite Coalition, the Policy Division of the ARCH National Respite Network, and can receive the latest updates on Congressional legislative activity important to respite and the families you serve, as well as information from the states about program implementation. The National Respite Network is a program of the Chapel Hill Training-Outreach Project.

National Respite Locator Service

This site links not only to respite providers and programs, but to state by state fact sheets on funding and program eligibility with state contacts for the state respite coalition and the Lifespan Respite grantee.

Respite Education & Support Tools (REST)

The REST program – an evidence-based respite-training program – provides the skills and tools needed to provide quality respite.

Shepherd's Centers of America

The organization provides respite care, telephone visitors, in-home visitors, nursing home visitors, home health aides, support groups, adult day care, and information and referrals for accessing other services available in the community. Services vary by center.

Training for Family Caregivers

Community-based resources may offer training and classes for family caregivers. Such resources may include: your local hospital; home care agencies; Area Agency on Aging, voluntary health agencies, and county and state departments of health.

American Red Cross

American Red Cross has developed training programs for family caregivers. You will need to check with your local chapter to find out if there are classes in your area.

Disease Specific and Health Related Agencies and Websites

This list was provided by the National Health Council
Website: http://www.nhcouncil.org​

• American Autoimmune Related Diseases Association
• American Chronic Pain Association
• American Foundation for AIDS Research
• American Liver Foundation
• American Lung Association
• American Tinnitus Association
• Asthma & Allergy Foundation of America
• Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
• Crohn's & Colitis Foundation of America
• Cystic Fibrosis Foundation
• Epilepsy Foundation
• The Foundation Fighting Blindness
• The Leukemia & Lymphoma Society
• Lupus Foundation of America
• March of Dimes Birth Defects Foundation
• Mesothelioma Web
• Muhammad Ali Parkinson Center
• Myasthenia Gravis Foundation of America
• Myositis Association
• National Down Syndrome Society
• National Hemophilia Foundation
• National Mental Health Association
• National Osteoporosis Foundation
• National Psoriasis Foundation
• National Sleep Foundation
• Osteogenesis Imperfecta Foundation
• Sjogren's Syndrome Foundation
• Spina Bifida Association of America
• Tourette Syndrome Association, Inc.
• Tuberous Sclerosis Alliance
• United Ostomy Association
• United Cerebral Palsy

• Alzheimer's Association
• Alzheimer's Disease Education and Referral Center
• Alzheimer’s Foundation of America

• Arthritis Foundation
• Johns Hopkins Arthritis Center
• National Institute of Arthritis and Musculoskeletal and Skin Diseases

• American Cancer Society
• CancerCare
• Cancer Support Community
• Cancer.Net
• Centers for Disease Control and Prevention
• Help for Cancer Caregivers
• National Cancer Institute (NCI) at the National Institutes of Health
• National Coalition for Cancer Survivorship
• Cancer and Careers
• Cancer Financial Assistance Coalition
• Cancer Research and Prevention Foundation

• American Diabetes Association
• Centers for Disease Control and Prevention’s diabetes division known as the Division of Diabetes Translation
• International Diabetes Federation
• Diabetes Research Foundation
• National Diabetes Education Program

• American Heart Association
• American Stroke Association
• Centers for Disease Control and Prevention
• National Stroke Association
• National Institutes of Health
• The National Coalition for Women with Heart Disease
• US National Library of Medicine

• American Kidney Fund
• Centers for Disease Control and Prevention
• National Kidney Disease Education Program
• National Kidney Foundation
• Kidney Cancer Association

• ALS Hope Foundation
• The ALS Association
• The Robert Packard Center for ALS Research at Johns Hopkins
• Huntington's Disease

• Multiple Sclerosis Association of America
• Multiple Sclerosis Foundation
• National Multiple Sclerosis Society

• Brain Injury Association of America
• BrainLineMilitary.org
• Brain Trauma Foundation
• Centers for Disease Control and Prevention

• National Center for PTSD
• National Institute of Mental Health
• US Department of Veterans Affairs

• American Parkinson Disease Association
• Davis Phinney Foundation for Parkinson’s
• National Institutes of Health
• National Parkinson Foundation
• Parkinson’s Disease Foundation
• The Michael J. Fox Foundation

• Rare Caregivers
• National Organization for Rare Disorders
• National Institutes of Health
• Rare Diseases Clinical Research Network

• Centers for Disease Control and Prevention
• National Organization for Rare Disorders