| Page 9 | Caregiver Action Network

The Rest of my Possible World

The Rest of My Possible World

 

I dreamt of grace and wisdom.

My mother’s virtues, surpassed.

Yet now I face each troubled day.

And cannot find the heart.

 

Not refined, knowing, good.

I failed to reach the best I could.

I am not one who rose above

I’ve rarely touched the best I can.

 

Dreamers live for what should be

And toil to make it real.

True hybrid breeds improve growth

Spreading forests in moral soil.

 

Looking for answers and help

My boyfriend Carl Langley Belcher of nine months was hit by a truck just over a year ago. His back was broken in 17 places. Since i met him he told me about having seizures. I only recently witnessed 2. But I've found him unconscious multiple times, as he will not seek help or allow for emergency help, I'm having to put the puzzle pieces together. i just recently realised his mid swings and extreme behavioral changes are connected. He sees lights, has headaches, blurred vision, vertigo (born deaf has cochlear implants from a young age).

10 years without diagnoses !

After one week, I will complete two years not seeing her. About 10 years ago I started to notice that my mother forgetting things, names and places.

My mother was so nice and has a good big heart, never say no, never hurt anyone and she always forgive others. She was a teacher, goes everyday to work without knowing that she had an early stage Alzheimer disease. Symptoms start to appear and no one understands what is happening!

Caregiver Stress

<p>Hello..I am an 84 year old veteran and I am undergoing severe stress over this trying to get the help I need for my wife. Currently Medicare is providing what I deem to be is the 'Threat care'; ie, we're going to terminate your nurse, occupational therapist, physical therapist, and home health aid at such and such time. Their service is so irregular and on their terms as a 3 times stroke patient myself I am approaching another one I'm sure with this stress.

Overwhelmed and Out Numbered

I'm new to the group, just joined today. I live with my parents who are both over 80, my Mom has Dementia. Her mom and grandmother both died in nursing homes in lockdown units from Dementia. Both women were over 90. I've been caring for my Mother for over 10 years now. My Dad is in excellent health for a 80 year old man but he is suffering from old age mentally. Nothing too unexpected - you know - memory loss, slowing down, etc - but he checks out especially when Mom gets sick or has a really bad day. My brothers live out of state, both married and financially better off than me.

My Son and Me

Really hard to talk about sometimes. There's so many conflicting emotions. First, I had no idea what a TBI was or meant. It almost feels like life in prison. We are both in a solitary confinement of our own. I am 62 years old and my son is 34 years old. He was hit by a taxicab on August 6, 2005. His TBI affected his memory, and suffers both short term and long term memory loss. So, it's left up to me to remember. And at my age and later, scares the heck out of me. Who will care for him? Who will remember for him? I am sad, mad, and ao much more.

My “All IN”… moment in Life: Reflections on an “All IN” caregiving season….15 years later:

Sept 11, 2001 (Yes, that 9/11)  

I would have never fathomed I would ever experience an ‘ALL IN’ extended-moment in my life at the beginning of my 4th decade.  I would have guessed that would be much later in life, as I’d witnessed with so many others.  But in just a few days, I was confronted with this decision.  “All IN” or Not ‘all in’?

Wierdgrace

my husband was diagnosed with Parkinson's and he is 71.  He is on senement 3 x a day. And xanax and has swings up and down.  Nausea is constant, mood swings too, had some memory issues, that were short term. Like staring at coffee pot and not knowing how to use, cell phone forgetting how too use, and something we talked about 30 minutes before, I keep calm, as I find he cries if I try to explai. Too much. I love him and will take care of him always so I need advise.  His Dr. is good but he is running test and helping me with him, so he will let me take care of him.

Help I'm not sur what to do

Hello my name is Beth I quit work three and a half years ago to take care of my parent's full time how ever it has been difficult my health isn't the greatest but I managed it isnt I cant deal with, the things with my parents well the older the get the worst they get I don't mind cause they raised me but now financially,there is noway I can afford a caregiver to be honest personally I would'nt want to,and my parents can not afford one as well they help get me personnal items,So my question is can I apply for cash help some where for being there full time caregiver,I don't know where to go I

Franny

My name is Carolyn and I am the primary caregiver for my mom for the past 2 years.  This has been the toughest thing I have ever done and Im not sure if i will survive it.  My mom has been getting worse every day and the disease sped up and seemed to skip some of the book stages with every surgery she had.  Mom had fallen and broken a hip and then a year later fell and broke the other one.  The found breast cancer for the second time and she went through year of treatments.  My poor mom has been through so much I'm not sure how much more she can take.