Hi everyone I'm a single mom with a 12 year old disabled child who has chronic lung disease epilepsy and cerebral palsy and it's hard finding help for special needs kids I live in newark nj and i could never find any kind of help for him it's pretty hard and very upsetting but I have no choice but to speak for him and fight for what's right

I was blessed to be my Mother's solo full-time caregiver for 5+ years. Stroke brought about Wernicke's Aphasia, and in time, the dementia presented itself. Within the first few months of caregiving, I found no articles or books on solo full-time caregiving, so I decided to keep my notes and journal up to date, with the intention of publishing a book on how solo full-time caregiving got done. All of the reading I came across stressed the importance of putting together a caregiving team, so that the primary caregiver does not burn out.

I have cared for my both of my parents for years now. Free of charge. I have 2 older brothers who have done nothing for them and are now petitioning for conservatorship of the person and estate, accusing me of abusing my parents for financial gain. I need help.

My husband has a lot of medical issues.  He is a diabetic, PTSD, beginning stages of Dementia, and Depression

I have been his care giver for about 7 years.  I also take care of my 85 year old Mother.  Mom is pretty much dependent and is able to take care of her daily needs  She has magular degeneration and is legally blind.  I take care of all of her medical needs and my Sister helps with getting her groceries, sets up her meds monthly and other mis. things.

I moved my parents into my building 10 years ago after my dad had a major brain bleed.  Over that time both parents have had a variety of major health issues. I have 24 care for them and I see them 2x/day every day. Right now my mother is inpatient after breaking a femur and then getting pneumonia. My dad told me he has a “bad cold” which inevitably becomes something more serious. I’m not sure how much more I can handle. And I have resources and help and am right here but it may be too much. Any words of wisdom??

January 2018 marked the implementation of an executive order previously signed by President Trump which would reshape the Affordable Care Act. A major game-changer was that agencies could now find additional ways to increase competition and choice in health care.  There is no argument about the dangers that frequently accompany monopolies. However, a far-greater danger may be the failure to address what’s lurking in the shadows and waiting for an opportunity to hurt you when you are most vulnerable.

We have been married almost 45 years, but not such a great marriage. We don't believe in divorce, that's all. So we stick together. He is now disabled and on hospice care, since late January of 2017. I am, for all intents and purposes, the sole caregiver. Our youngest daughter lives close by, but has a house that also has an AirBNB, two children, whom we adore, and a full time job.

In 1994, my 19-year old daughter, Cristina was diagnosed with Leukemia and opted for a bone marrow transplant in an effort to save her life. The diagnosis, treatment and its side effects led us down a path that forever changed our lives. This story describes our constant encounters with the endless maze of doctors, hospitals, insurance companies, social service agencies, and alternative healers.  I was  a single mother living from pay check to pay check, and somehow coped with keeping us financially afloat, as I became Cristina’s full time, 24/7 caregiver.